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But you don't look sick!!!!!

  • Writer: Sally O'Gwin Gentry
    Sally O'Gwin Gentry
  • May 25, 2020
  • 2 min read

Updated: May 31, 2020


I have kept delaying sharing another entry due to my continued denseness regarding technology!! Once again thank you so much to my patient, skillful niece!!!



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When I think back upon the early days of fibromyalgia sometimes it seems like eons ago, and other times it seems like only yesterday. That in itself is very important to me because I have a tendency to focus on the negative, rather than the positive. That is a reality check for me because it is so easy to take things for granted! I have to remind myself how incredibly lucky that I am to have made all the progress that has enabled me to live with decreased pain, anxiety, insomnia, depression ….. When the fibromyalgia began, I remember distinctly thinking and feeling that there was no way that I was going to be able to live with this excruciating pain throughout my body! And that was just the tip of the iceberg regarding the physical components of auto immune diseases. I believe that the emotional/mental aspects of the diagnoses are more critical than the physical symptoms. I remember telling God that this is not going to work!!! And furthermore God, " there is no way that I can handle this!" And I felt that way for a long time. I felt all the feelings of grief, as one feels in a loss! I was beginning the first stages of the grief cycle. Dr. Kubler-Ross originated those 5 stages in her model. Denial, Anger, bargaining, depression, acceptance. I believe that the loss of health is a huge grief issue. Health: pre fibro vs. post fibro. I have to be aware of my own triggers regarding concentrating on the negative facts that I cannot change: and, forcing myself to concentrate on the positive, for what I have control. But it sure is hard to think positively about excruciating pain that has interrupted your way of life in every facet.

Going back to the title on this entry, it sure was hard for me to think positive thoughts about a new, young podiatrist that I had to visit due to horrible pain on the bottom of my feet! I was suffering from planters faciatis, and he asked me, "Do you really think that fibromyalgia is real?" Oh boy!!!! ( if only he could have it for a month!!!!!!)


It would be very helpful to me if you wanted to share any thoughts or feelings on your journey with fibro/chronic pain!





 
 
 

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2 Comments


Sally O'Gwin Gentry
Sally O'Gwin Gentry
May 28, 2020

I am so glad that you shared that your faith helps you the most in dealing with this horrible disease! Mine has also, but it has probably been a more upward battle than yours. 2 steps forward, 3 steps back. I went through times of feeling such anger at God. But know I understand that it was all a part of his bigger plan. Thank you for sharing. Sally

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mrglmb60
May 28, 2020

I shared some of my journey with chronic pain on facebook. I have grown so much spiritually these painful years having to depend on faith that helps me to go forward with hope each day. That is not to say I don't suffer and moan and groan to myself on those bad days and nights. But I end up in prayer asking for strength and direction to take better care of myself to find some relief.

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